Buddy Walk® on
The NDSS Buddy Walk®
on Washington is an annual two-day advocacy conference
that brings the Down syndrome community together to
advocate for legislative priorities that impact the
lives of people with Down syndrome and their families.
For more information, see: Buddy
Walk® on Washington
WORLD DOWN SYNDROME
March 21, 2013. For more
information, go to worlddownsyndromeday.org
BEST BUDDIES INDIANA "FRIENDSHIP WALK"
Sunday, April 28, 2013
The White River State Park Canal
Join other Best Buddies Indiana supporters and participants
as they raise awareness and funds for Best Buddies Indiana
high school and college programs at the 2013 Best Buddies
Indiana Friendship Walk on Sunday, April 28, 2013. The
event, which will be held along the White River State
Park Canal, includes a 5K competitive run/walk and a
2.6 mile non-competitive walk/run.
For additional information and to register, go to: www.bestbuddiesindiana.org/walk.
MARCH FOR BABIES
It's America's favorite
walking event! When you walk, you give
hope to the families of babies born too soon or sick.
money you raise supports programs in your community
help moms have healthy, full-term pregnancies. And it
research to find answers to the serious problems that
our babies. We've been walking since 1970 and have raised
an incredible $1.8 billion to benefit all babies. The
event takes place Saturday, May 11, 2013.
For more information, go to March
of Dimes - Indiana.
THE 41st Annual
July 19-21, 2013
Colorado Convention Center, Denver,
For more information, check out the NDSC
THE ARC US ANNUAL
August 2-5, 2013 at the
Hyatt Regency Bellevue on Seattle's East Side
in Bellevue, WA. For more information, go to www.thearc.org
2013 DOWN SYNDROME
FAMILY CONNECTION BUDDY WALK®
Takes place in Bloomington,
IN. Date and place TBA. For more details, go to www.downsyndromefamilyconnection.org
2013 DOWN SYNDROME
INDIANA BUDDY WALK®
Takes place on Saturday,
October 12, 2013 at Celebration Plaza,
White River State Park, Indianapolis, IN. For more details,
go to www.dsindiana.org
December 2-6, 2013. For
more information, go to InclusiveSchools.org
TASH 35th ANNUAL CONFERENCE
December 11- 14, 2013 in
Chicago, IL. For more information, go to www.tash.org
NDSS ADVOCACY ACTION CENTER
For current National action alerts and information bulletins,
For The Arc Indiana local action alerts
and legislative updates, click
NDSS, LETTERCASE AND OTHER PARTNERS CELEBRATE
THE NATIONAL DISTRIBUTION OF A NEW DOWN SYNDROME PRENATAL BOOKLETTE
New York, NY (January 27, 2011). The
National Down Syndrome Society has joined forces with
Lettercase, an independent non-profit clearinghouse
of information about genetic conditions, in an effort
to ensure that expectant couples learning about a diagnosis
of Down syndrome receive accurate up-to-date and balanced
prenatal information. An updated edition of the prenatal
booklet titled, Understanding a Down Syndrome Diagnosis,
will be available on January 31, 2011, including a nationwide
distribution of 10,000 complimentary copies funded by
the National Down Syndrome Society and the Joseph P.
The revised booklets were created with input and consensus
from both the medical and Down syndrome communities,
including the American College of Medical Genetics,
the American Congress of Obstetricians and Gynecologists,
the National Society of Genetic Counselors, the National
Down Syndrome Congress, and, of course, the National
Down Syndrome Society. To see the complete article,
From The Therapist
Some of our contributing
Therapists have shared with me that they take their
cue from the parents on how much to interact with them
during therapy sessions. The Therapists shared that
generally parents who ask to be present at sessions,
ask questions, are actively engaged in the session,
etc. are more likely to want a high level of interaction
with the Therapist. However, if parents "disappear"
during the session, never ask questions, etc., the level
of interaction with the Therapist is much lower. So...
if you were wondering how to become more involved in
your child's therapy session -- be actively engaged
in the session, ask more questions and/or ask the Therapist
show you what activities you can do with your child
until the next session.
it always look easier while the therapist is there?
Evan's PT, Melissa, always comes up with ways to make
therapy "home work" a little more fun! She
is a firm believer in using every day items in therapy.
Here, Melissa is using "walking sticks" and
a scooter board to help Evan walk across the floor.
The sticks are easy for Evan to hold, and the scooter
board makes it easy for Melissa to move with him. Evan
can also use the sticks to keep his balance when stepping
up. My favorite part of this exercise is that I can
walk behind Evan holding the sticks at the top while
he's holding on at the bottom -- no more back pain from
bending over and holding is hands while he walks, (other
older parents will appreciate that as much as I do).
make the walking sticks, you just need two dowel rods
(you can purchase them at any hardware store). Paint
the rods something fun and decorative that reflects
your child's personality. You can purchase the scooter
board at Target or most toys stores. If you can' find
a scooter board, you can use a rolling gardening bench.
You can finds those in the gardening section at Walmart,
Target, Lowe's, etc.
great discovery! While getting Evan to crawl was fairly
easy, we had such a difficult time finding something
to motivate him to walk! He had the mechanics down,
but just didn't seem that interested. One day, a friend
told me about shoes from China that squeaked and how
kids just loved walking in them. Knowing how much Evan
loves noise, I searched the internet and there they
were - Pip Squeaker Shoes. I ordered two pairs - one
to fit his bare feet and one to fit over his orthotics
(Yes! They come in wide and extra-wide.) Evan put them
on for the first time in a PT session and, of course,
took eight independent steps right away! He's been on
his feet every since then. One of the best things about
them is that the squeaker is in the heel of the shoe,
so to get them to squeak, the child has to walk heel-to-toe.
You can find Pip Squeakers at www.pipsqueakers.com
and at amazon.com. Lots
of styles and colors!
The WubbaNub™ is designed to keep the pacifier conveniently
placed to infant. Soft plush brings soothing comfort
and security. Vibrant colors are stimulating and captivating.
The WubbaNub™ is also an asset helping in the development
of hand-eye coordination.
- Birth (Full Term) to 6 Months
- Latex Free Medical Grade Silicone Pacifier
- Soft Comforting and Soothing Plush Toy
- Stays Close to Baby
- No Pacifier Cords or Clips
WubbaNub was a life saver! It was easy for him to hold
and was key in him learning to later hold his bottle
is a Bumbo
Seat. It did wonders helping Evan strengthen his
muscles to sit up. It is a European product that is
just now making its way to the US. I shared it with
one of Evan's therapist, and she has shared it with
other parents. You can get it locally from Babies'
Secret Unique Baby Products 317-733-8892. The Bumbo
Seat is now also available at Target, Walmart, Meijer
always tried to be careful when buying Evan’s
toys (most of his are Little Tikes), but considering
all the toy scares lately, this may be another good
option. They have a lot of great items to supplement
Nova Natural Toys
and Crafts is a small, family owned business
in Shelburne, Vermont. Nova has all sorts of Eco-friendly,
natural toys, from rattles and teethers to blocks and
Nova Natural was created 18 years ago out of a desire
to provide families and teachers with a wide variety
of natural products, which are conducive to creative
and wholesome living. We offer finely crafted toys that
inspire imaginative play, beautifully illustrated children's
books, a wide range of parenting and craft books, non-competitive
games which successfully combine action and challenge
with co-operation and compassion and natural craft and
art supplies to create your own works of beauty.
According to the philosophy that guides Nova Natural,
each toy should be age-appropriate in form and in function.
Toys should further the child's inner development allowing
children to express moods and feelings freely and have
an 'open-ended' quality, without the limiting, predetermined
play which can come when toys are too formed or too
fixed in their function. A simple toy allows the child's
imagination, full play. For example, a doll with only
suggested facial features can do anything imaginable,
laugh, cry, talk, etc. Toys should strengthen and encourage
the child's fantasy life so that a child can submerge
himself in play, in the world of myth and fairy tales,
live outside his day-to-day experiences, imitating adult
life with housekeeping toys and through pretend play.
The child is able to solve challenging situations when
he becomes a rescuing hero with his fire engine will
be the adult able to resolve difficulties in the office,
laboratory or factory, and 'rescue' the work situation.
'Play prepares the future, and playthings and the play
environment should give opportunity for this.' (Joan
Salter, The Incarnating Child)
Got drool? Get Bandit
"Bandit Bib™ is a small stylish baby bib
that looks more like a fashion accessory. It is 100%
cotton and made in the USA." I have found that
it is perfect for "big boy" Evan who still
struggles with tone around his mouth. He can wear it
school and it does not look like baby bib, but like
he's making a fashion statement.